ZacStrong: Hockey Award Named
The Zachary NF Fund
The Zachary Fund
The nonprofit fund was established through the University of Minnesota Foundation in 2010 and is dedicated to supporting research to help find the causes and find cures for NF and cancer
What is Neurofibromatosis?
Neurofibromatosis Type 1 (NF1) is a genetic congenital disorder that predisposes afflicted individuals to tumors of the central nervous system and the peripheral nerves. More than 80,000 people live with NF throughout the United States. Observations regarding tumor development in neurofibromatosis have led to important insights regarding brain tumors in the general population. The causes of NF1 remain largely unknown, making this research effort even more important. Neurofibromatosis can cause: brain tumors, deafness, learning disabilities, facial disfigurement, cancer, optic gliomas
Who was Zachary?
Zachary was diagnosed with NF1 when he was 18 months old. He underwent years of treatments including chemotherapy, radiation, and surgery. Unfortunately his tumors recurred and became malignant. He lost his battle November 20, 2013 but right to the end he never wavered in his faith or positive spirit.
Zachary was the most amazing boy you would ever meet. He was kind, gentle, positive, faithful, and loving. He always had an infectious smile on his face. He greeted everyone as if they were the most important person. Zac never complained through all the years he fought this disease. He never said, “I can’t”. He was the true definition of what it means to be brave. He lived his life with dignity and grace and inspired others to do the same. He will be greatly missed by so many people. In his legacy we continue to raise money for tumor research through the Zachary NF Research Fund so that hopefully, others may benefit.
What Can You Do?
Click “Donate Now” tab to make a donation to the Zachary Fund through the University of Minnesota Foundation. Keep checking back for other fundraisers.