My Superhero – Zachary .
The Zachary NF Fund
The Zachary Fund
The nonprofit fund was established through the University of Minnesota Foundation to help find causes and cures for all persons with neurofibromatosis
What is Neurofibromatosis?
Neurofibromatosis Type 1 (NF1) is a genetic congenital disorder that predisposes afflicted individuals to tumors of the central nervous system and the peripheral nerves. More than 80,000 people live with NF throughout the United States. Observations regarding tumor development in neurofibromatosis have led to important insights regarding brain tumors in the general population. The causes of NF1 remain largely unknown, making this research effort even more important. Neurofibromatosis can cause: brain tumors, deafness, learning disabilities, facial disfigurement, cancer, optic gliomas
Who is Zachary?
Zachary is a lively and loving boy who inspires all who meet him with his warm personality, outgoing spirit, and relentless energy. At 18 months old he was diagnosed with NF1. Since that time he has undergone numerous hospitalizations, radiation, surgery, and chemotherapy. He continues to proclaim “I will never give up”. For current updates, visit Zac’s CaringBridge site at www.caringbridge.org/visit/zacharybartz
What Can You Do?
Join us at one of our fundraising events including an annual golf tournament July 29, 2013 (see Golf Tournament tab for more information) or a dinner/silent auction planned for September 14, 2013. Can’t attend a fundraising event? Click “Donate Now” tab to make a donation to the Zachary Fund through the University of Minnesota Foundation