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The Zachary Fund

The fund was established through the Minnesota Medical Foundation in 2010 to help find causes and cures for neurofibromatosis and cancer

What is Neurofibromatosis?

Neurofibromatosis Type 1 (NF1) is a genetic congenital disorder that predisposes afflicted individuals to tumors of the central nervous system and the peripheral nerves.  More than 80,000 people live with NF throughout the United States.  Observations regarding tumor development in neurofibromatosis have led to important insights regarding brain tumors in the general population.  The causes of NF1 remain largely unknown making this research effort even more important.  Neurofibromatosis can cause: brain tumors, deafness, learning disabilities, facial disfigurement, cancer, optic gliomas

Who was Zachary?                                                                         

Zachary was diagnosed with NF1 when he was 18 months old.  He underwent years of treatments including chemotherapy, radiation, and surgery.  Unfortunately his tumors recurred and became malignant.  He lost his battle November 24, 2013 but right to the end he never wavered in his faith or positive spirit.

Zac was the most amazing boy you would ever meet.  He was the kindest, gentlest, positive, faithful, and loving person.  He always had a smile on his face.  He greeted everyone as if they were the most important person.  Zac never complained through all the years he fought this disease.  He never said, “I can’t”. He was the true definition of what it means to be brave.  He lived his life with dignity and grace.  His spirit warmed an entire room.  His smile was infectious.  He touched more people in his short life than many people who live longer.  He inspired others to be better people.  He will be greatly missed but we will continue to his legacy by continuing the Zac Research Fund so that others may benefit.